Thread: Stopping Tykerb
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Old 05-03-2007, 09:10 PM   #4
Muldoonmom
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Join Date: Jul 2006
Location: Coconut Grove, Florida
Posts: 25
Sherry,
I wasn't really sure if the severe (and I mean SEVERE) diarrhea I experienced was due to the tykerb. But based on your experience and others, I'm now sure that was it. DARN!!
Now I've decided to stay off it a little longer. My daughter and granddaughter arrived today from Buffalo and we're having a baby shower at my house on Sunday. Then next week, my husband and 93 year old Mom and I are going to Buffalo for my daughter's college graduation - on Mother's Day. I do not want to jeopardize either occasion with the most miserable side effects!
I'm so glad I found this website. Your input really helps me through a difficult time.
Unfortunately, I can't give up on the tykerb yet. Too much going on with mets. But I remain hopeful that I'll be able to get through the side effects and after a few weeks, I'll adjust to the drug. I never had any problem with Herceptin. I'm surprised that tykerb can upset your system so harshly.
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Debbie
8/96 - Diagnosed Stage I - 1.8 cm tumor in left breast
0+ lymph nodes, ER+/PR-
Lumpectomy, radiation, CMF x 9, Tamoxifen
6/99 - Stage IV - 1.2 cm tumor in left lung, HER2 NEU +
VATS thoracotomy, Herceptin and Arimidex
2000 - Bone mets to left scapula and right ribs
Herceptin; Taxol x 9, Zometa
2/2001- Rt. lung - 6 mm tumor
Mini-thoracotomy
2/2001 - 12/2006
Xeloda-10 months, Navelbine-10 months,
Gemzar, Abraxane, Taxol/Carboplatin x 10, Aromasin, Faslodex,
Zoladex, Tamoxifen
2001 - Radiation to left scapula for pain managenent
9/2004 CyberKnife to right rib
7/2006 - Pleural effusion - thoracentesis performed twice
1/2007 - Pleuradesis and Taxotere x 5
4/2007 - Stopped Herceptin after 8 years (weekly).
Started Tykerb with Taxotere but stopped after 10 days
5/2007 - Stopped Taxotere, restarted Tykerb and Herceptin
Currently on Tykerb, Herceptin, Zometa
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