HER2 Support Group Forums - View Single Post - Wednesday night prayers coming from me too

Lori R · 04-30-2009, 05:00 AM

Joy,
While this is a very frightening time, I am sure there are more options.

I couldn't tell from your post as to whether you have had a recent CT scan of the liver. Is there a single, tumor. If so, you might want to consider the RFA or cryo surgery. (I am scheduled for cryosurgery next week to whack down a 3 cm tumor in my liver.)

You've mentioned a couple times that maybe the tumor isn't her2+ anymore. Have you had a recent biopsy? Understanding the pathology of the tumor is really important.

Rich provided me with information about Swedish hospital that I have filed in my "next steps" folder. Sounds like this could be yet another option.

Joy....I can still hear the fight in your post. You will find another option. It's not time yet!! You have wayyyyyy too much to live for. That counts for a lot.

Hugs from Colorado.....Lori

04-30-2009, 05:00 AM	#10
Lori R Senior Member Join Date: Jan 2008 Location: Evergreen, Colorado Posts: 454	Joy, While this is a very frightening time, I am sure there are more options. I couldn't tell from your post as to whether you have had a recent CT scan of the liver. Is there a single, tumor. If so, you might want to consider the RFA or cryo surgery. (I am scheduled for cryosurgery next week to whack down a 3 cm tumor in my liver.) You've mentioned a couple times that maybe the tumor isn't her2+ anymore. Have you had a recent biopsy? Understanding the pathology of the tumor is really important. Rich provided me with information about Swedish hospital that I have filed in my "next steps" folder. Sounds like this could be yet another option. Joy....I can still hear the fight in your post. You will find another option. It's not time yet!! You have wayyyyyy too much to live for. That counts for a lot. Hugs from Colorado.....Lori __________________ 2007 Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008 Feb-Complete 6 cycles- T&H- NED March - Continue - Herceptin Only April - Rads for 6 weeks 2009 Continue Herceptin - Continue NED April - Recurrance- 3 cm. Liver Met May - Cryosurgery June - November - Abraxane + Herceptin Aug - PET/CT - CTC = 0 Back to NED 2010 January - Continue NED July - Recurrance - 3 cm Liver Met CTC=1 August - Cryosurgery #2 August - November Navelbine November - Back to NED - End Navelbine 2011 Feb - Recur - 4 cm Liver Met - Same Left Lobe March Surgery it is -Couldn't get a clean margin July - Confirmed continued liver involvement August - Begin Herceptin + Tykerb October - Mixed results from H+T Add Abraxane + H + T - Nov - April 2012 January PET Scan - It's working!! April - Back to NED July - Recurrance August - Begin TDM-1 Trial (Taxol + TDM-1)