HER2 Support Group Forums - View Single Post - A question about what can be taken with Tykerb.

Beckie · 04-22-2009, 10:08 AM

I have been doing well on Tykerb/Xeloda for 18 months, but then had to change to Navelbine and Herceptin when my lung mets started growing. I was off Tykerb for 4 months and my MRI showed 2 small (3, and 4 mm.) lesions in the cerebellum (already taken care of). The MRI before I went off Tykerb was clean. I want back on Tykerb, but my oncologist says he likes me on Navelbine. We have agreed on 3 weeks for research and of course, you all are the best source I know! What have you taken with Tykerb to control other mets? Do you think Tykerb protects your brain as much as I do? Thanks for any information you can give me.

God bless you all!

Beckie

04-22-2009, 10:08 AM	#1
Beckie Senior Member Join Date: Mar 2007 Location: Norco, Southern California Posts: 53	A question about what can be taken with Tykerb. I have been doing well on Tykerb/Xeloda for 18 months, but then had to change to Navelbine and Herceptin when my lung mets started growing. I was off Tykerb for 4 months and my MRI showed 2 small (3, and 4 mm.) lesions in the cerebellum (already taken care of). The MRI before I went off Tykerb was clean. I want back on Tykerb, but my oncologist says he likes me on Navelbine. We have agreed on 3 weeks for research and of course, you all are the best source I know! What have you taken with Tykerb to control other mets? Do you think Tykerb protects your brain as much as I do? Thanks for any information you can give me. God bless you all! Beckie __________________ Diagnosed 4/06, age 55 1.1 cm tumor Pre-op x-ray caught lung nodules 6/06 - Stage 4, Her2+++, er/pr- Mets to lungs(largest 3 cm), liver (largest 5.5 cm), and bones Began taxotere, herceptin, & aredia 7/06 - radiation to lower spine & left shoulder for pain 8/06 - everything smaller 12/06 - stopped taxotere (toe infections) 5/07 - bone mets advancing 6/07 - add navelbine to herceptin & aredia 6/07 - discovered brain mets (3 in cerebellum, largest 2 cm.) 7/07 - WBR, change to Tykerb/Xeloda 9/07 - targeted radiation 10/08 - started navelbine/herceptin 2/09 - brain mets - targeted radiation 5/09 - mets in liver progressing, changed to Ixempra 7/09 - mets in liver still going, to the brain again, on gemzar now 9/09 - gemzar failed, started Doxil today I know Who holds the future, and I know He holds my hand.