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Old 10-03-2012, 05:55 PM   #52
MikeF
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Join Date: Sep 2010
Location: Shelby, N.C.
Posts: 114
Re: TDM-1 side effects

Not sure if this needs to be just an update on Barb or an addition to TDM-1 side effects. Barb has had two treatments the last on the 18th of Sept. By the 20th she was running a fever of 103.5 and finding it difficult to breath. We ended up in the emergency room where they diagnosed her with pneumonia and plueral effusion. I've read where pneumonia can be a side effect, has anyone else experienced this. Shes had 11 days of oral antibiotics (Levaquin) as well as three infusions of Vancomycin early last week. All appeared well untill we decided to take a short trip to the coast this past weekend her fever returned along with a persistent cough so we returned home and had her at the doctors office Monday where the started another round of the Vancomycin. Hopefully the fever leaves before her next scheduled treatment next Tuesday. So I guess were not sure if this is helpfull for you TDM-1ers out there.
__________________
Diag. Aug. 2010
ER- PR- Her-2 +++ Stage IV
Mets to T 6th Vertabrae
Radiation to spine
10/23/10StartNavelbine
11/19/10 Port installed
11/22/10 Started 2nd cycle
1/10/11 Finished 2nd cycle
1/24/11 Herceptin Only
3/7/11 progression, start Taxol/Herceptin
4/18/11 Skin mets appear increase treatments to weekly
rash spreads to right breast
7/5/11 enroll in TDM-1 study
7/29/11 randomly assigned Tykerb drop out of trial and start Tykerb /Herceptin no Xeloda skin mets gone Tykerb working
1/31/12 Skin mets return add Xeloda
5/9/12 Stop Tykerb skin mets back
5/17/12 Return to Navelbine/Herceptin
6/26/12 start process for TDM-1 compassionate access
8/28/12 Start TDM-1
10/9/12 third TDM-1 no response yet
10/23/12 Start Haloven
1/17/12 Start Perjeta/ Herceptin/Taxotere
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