HER2 Support Group Forums - View Single Post - 12 Years and Stage IV

StephN · 02-19-2014, 08:54 PM

Hello everyone -

I also got good news today. So will add mine to the others posting of late.

It was January of 2002 that my diagnosis upped itself from stage II to IV. Thus I am looking back on a much longer trail of years than I ever thought possible on that dull January day when my med onc announced my elevated CA 27-29 levels and I told him about my side ache.

The only thing I need to work on is improving my DEXA scan scores and hope that taking more calcium will make a difference. Perhaps I will go back on one of the infused or injectable bone hardners by summer.

02-19-2014, 08:54 PM	#1
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	12 Years and Stage IV - No sign of my cancer Hello everyone - I also got good news today. So will add mine to the others posting of late. It was January of 2002 that my diagnosis upped itself from stage II to IV. Thus I am looking back on a much longer trail of years than I ever thought possible on that dull January day when my med onc announced my elevated CA 27-29 levels and I told him about my side ache. The only thing I need to work on is improving my DEXA scan scores and hope that taking more calcium will make a difference. Perhaps I will go back on one of the infused or injectable bone hardners by summer. __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018. Last edited by StephN; 02-19-2014 at 11:18 PM..