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Jackie07 · 11-11-2010, 12:04 PM

Hi Biddy,

There are a couple of 'long-term survivor' 'long-time survivor' threads you can access by typing into the 'Search' window. There are several newly diagnosed who have participated in T-DM1 and have very good result.

'Cancer' is always a shocking word. The old, grim news about Her-2 doesn't help when we look up literature on the subject. However, since the advent of Herceptin, Her2 has become one of the most treatable breast cancer.

And new technology is bringing everyone hope. I was just told that one of three small tumors (Central Neurocytomas - unrelated to BC) has the potential to block the CSF flow in my brain. I've had Gamma-knife nine years ago to curb the growth and thought I might need to 'Gamma' it again. But then I search the PubMed and found out there are newer, more versatile technology/machines for treating tumors in different parts of the body. And our local hospital just purchased one (Novalis Tx) in June.

I know how hard it is for family members to be in this kind of situation. I was quite 'happy' when my life-long brain tumor was found even though there were a couple of days before the surgery when I suddently got 'frightened' (just the toughts of someone cutting into my head...) Yet while I was being wheeled into the surgical ward with a smile, my family members were all under tremendous stress. My Oldest Brother, who had come from overseas - representing my side of the family - literally wept. He got tears in his eyes again 5 years later when my husband and I went 'home' to visit my family.

Positive thinking increases the release of endorphin in our brain and improves the immune system to fight all kinds of diseases. Please help your sister remain positive. Please let her know that she's got a legion of fellow fighters here supporting her.

11-11-2010, 12:04 PM	#3
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,808	Re: Grieving already Hi Biddy, There are a couple of 'long-term survivor' 'long-time survivor' threads you can access by typing into the 'Search' window. There are several newly diagnosed who have participated in T-DM1 and have very good result. 'Cancer' is always a shocking word. The old, grim news about Her-2 doesn't help when we look up literature on the subject. However, since the advent of Herceptin, Her2 has become one of the most treatable breast cancer. And new technology is bringing everyone hope. I was just told that one of three small tumors (Central Neurocytomas - unrelated to BC) has the potential to block the CSF flow in my brain. I've had Gamma-knife nine years ago to curb the growth and thought I might need to 'Gamma' it again. But then I search the PubMed and found out there are newer, more versatile technology/machines for treating tumors in different parts of the body. And our local hospital just purchased one (Novalis Tx) in June. I know how hard it is for family members to be in this kind of situation. I was quite 'happy' when my life-long brain tumor was found even though there were a couple of days before the surgery when I suddently got 'frightened' (just the toughts of someone cutting into my head...) Yet while I was being wheeled into the surgical ward with a smile, my family members were all under tremendous stress. My Oldest Brother, who had come from overseas - representing my side of the family - literally wept. He got tears in his eyes again 5 years later when my husband and I went 'home' to visit my family. Positive thinking increases the release of endorphin in our brain and improves the immune system to fight all kinds of diseases. Please help your sister remain positive. Please let her know that she's got a legion of fellow fighters here supporting her. __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe Last edited by Jackie07; 05-29-2011 at 08:43 PM..