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fauxgypsy · 01-23-2015, 08:22 PM

It has been almost 8 years and I have been NED for almost that long. I still remember how terrifying it was. I still have moments. It has gotten better for me but I still worry about it coming back. I think that we don't get the care we need emotionally. I have been reading about the long term effects of breast cancer. We try to be strong, to be warriors, to keep from letting our friends and family down and we don't deal with the fallout until months or years later.

01-23-2015, 08:22 PM	#7
fauxgypsy Senior Member Join Date: Apr 2007 Location: Mississippi Posts: 600	Re: Scared It has been almost 8 years and I have been NED for almost that long. I still remember how terrifying it was. I still have moments. It has gotten better for me but I still worry about it coming back. I think that we don't get the care we need emotionally. I have been reading about the long term effects of breast cancer. We try to be strong, to be warriors, to keep from letting our friends and family down and we don't deal with the fallout until months or years later. __________________ In the world of destiny, there are no statistics. Jan. 26- mammogram and ultrasound- suspicious lump Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes ER+/PR+, her2 +++, nuclear grade 3 of 3 February 20-PET scan showed something on liver. No biopsy. March- Started carboplatin, herceptin, taxol on a four week cycle May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy June 21- new onc, very concerned that there had been no biopsy, June 18th-CAT scan, bone scan-negative August 7th - Brain MRI-negative August 9th- mastectomy, all pathology negative January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07 July 2008-Finished Herceptin!