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Old 03-06-2013, 03:37 PM   #18
linn65
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Join Date: Dec 2012
Location: Attica, IN
Posts: 371
Re: I think cancer treatment can be in humane

This board helps soooo much! Since my last radiation 2/27 it has been tough! I haven't went to work since last Tuesday, and I think or feel sometimes the perception of radiation isn't a big deal compared to chemo. I think both have there own set of problems and neither is a cake walk. The last week I didn't think I was going to make it for my muga scan and the follow up with radiation. I cried most of the drive thinking I can't do it, but I made it. Fortunately, all the medical people at the facility or incredibly kind, and I was able to dry it up before I went in for muga. I am sure I looked like a pathetic mess!

Anyway, the burn is improving daily and it is more tight and sore under my arm. Also, I did have two big crying episodes two nights in a row. However, today I haven't cried and feel a stronger then the past week. . I can be a very lonely and mental battle for sure, and I can understand others feeling strong when finished with treatment. There is no way but up when you are battling, fighting, climbing this long road of Breast Cancer.

I know or am sure there are different supportive things in place but when you are in the midst of it all you are too exhausted working on the treatment to figure it out. A case worker would be ideal as Debbie said and they could set those types of things up. I know in gas alone it has cost over $100 a week just to get to treatment and a gas card would have been nice. Meals on wheels, prescription delivery, grocery delivery....All would be great!

People ask what they can do, but I have never been one to say..well, do this or that. I just know if I am on this journey for reason I hope I can pay it forward or help someone else knowing what it's like.

The tears of a BC patient or I should say for me has been at times such a deep grieving process and there are times when I wonder if I can make it through it all. However, each day I start over and try. I never knew I would have so many tears to cry, but I am hoping for a healing on the inside and out that I had no idea was possible.

This forum is my therapy and am thankful for it!!!
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant

9/2012 Pre-adjunctive TCH chemo.

12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.

12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+

2/27/13 6 weeks of IMRT radiation finished

2/2013 Started on Tamoxifan 5 years.

8/2013 will take last Herceptin, 17 treatments total every 3 weeks.

BRCA1 & BRAC2 - Negative

August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.

3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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