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Old 08-08-2011, 03:16 PM   #11
BonnieR
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Join Date: Jun 2007
Posts: 2,210
Re: Spot on lungs found on PET - nurse says dont lose any sleep!!!

Adding my condolences. And hopefully adding some peace of mind..... It is a long story which I have recounted here before so I will not go into the details. Except to say that I had scans that lit up and the bottom line was that it was inflammation from some old pneumonia which I had no symptoms of. (I had to endure a surgical biopsy, misdiagnosis of lung cancer and removal of a lobe before the truth was discovered!) Later a pulmonologist told me they should have first given me antibiotics to see if it cleared. Start with the most likely thing. In my case, everyone rushed to judgement too soon.
Nevertheless, the nurse should not be passing out platitudes. And it would be good if you can see someone sooner. Even have a pulmonologist look at the results.
Keep the faith
ETA: the reason for my scans was chronic cough.
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Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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