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chrisy · 08-10-2009, 01:01 PM

Marie,
You seem so weary - and of course with good reason. Yet you stand and keep going. You are so amazing, I am filled with gratitude that I am lucky enough to know you and love you and bear witness to your great love for Ed.

It is encouraging that Ed's tumor markers are continuing to decrease. That seems to be one of several tiny hopeful signs in your report. That you are "curious" about what's going on in the brain is a fair understatement I am sure. The next time Ed tries an MRI could you ask to be in the room with him? Just feeling your hand on his could be very calming.

Marie, you know that you and Ed are in my constant prayers, and you are one of my first waking thoughts every day. Take care of yourself, as well as Ed.

Much love
Chris

08-10-2009, 01:01 PM	#15
chrisy Senior Member Join Date: Sep 2005 Location: Central Coast, CA Posts: 3,207	Re: ~Mighy Oak Update~August 10,2009 Marie, You seem so weary - and of course with good reason. Yet you stand and keep going. You are so amazing, I am filled with gratitude that I am lucky enough to know you and love you and bear witness to your great love for Ed. It is encouraging that Ed's tumor markers are continuing to decrease. That seems to be one of several tiny hopeful signs in your report. That you are "curious" about what's going on in the brain is a fair understatement I am sure. The next time Ed tries an MRI could you ask to be in the room with him? Just feeling your hand on his could be very calming. Marie, you know that you and Ed are in my constant prayers, and you are one of my first waking thoughts every day. Take care of yourself, as well as Ed. Much love Chris __________________ Chris in Scotts Valley June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?" 9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++ 10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response! 04/05 - 4/07 Herception every 3 wks, Continue NED 04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial 06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin 01/08 Progression in liver 02/08 Begin (TDM1) trial 08/08 NED! It's Working! Continue on TDM1 02/09 Continue NED 02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED 12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver 07/11 - 11/11 Herceptin/Xeloda -not working:( 12/11 Begin MM302 Phase I trial - bust:( 03/12 3rd times the charm? AKT trial 5/12 Scan shows reduction! 7/12 More reduction!!!! 8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!) 9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3 11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc 11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go. 2/13 Gemzar/Carbo/Herceptin - no go. 3/13 TACE procedure