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Kim,
I also live with fear of what life would be like for myself and my 2 kids (13 and 9) without Caryn, but I hang on to the belief that the rules have changed and continue to change dramamtically in short periods of time. I find it helpful to focus on short windows. As an example, within the next 3-5 years how much better will they be able to manage this disease than they are now? I believe significantly. How soon after that will there be a cure? All it takes is ONE discovery!
As a result of all the time I spend researching and reading, I wouldn't be surprised if we're soon faced with an overpopulation problem as a result of all the medical advances that are being made at an astonishing pace. Imagine that!!! It seems that technology has allowed us to accelerate the discovery process so dramatically and so quick that....Live, Love and Be Happy!!!!
Best regards,
Eric
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