Unregistered

I will soon be starting Tykerb (1000mg/day same as 4 pills/day) in addition to my Herceptin treatment. I am not on Xeloda.

For anyone who is already on Tykerb + herceptin but not on Xeloda:
1) how long have you been taking Tykerb + Herceptin?
2) what side effects did you experience?
3) how soon after starting Tykerb did you experience the side effects?
4) what did you do or take to minimize the side effects?
5) did you start off at the max dose, or did you gradually work your way up to the max dose?
6) do the side effects persist or does your body adjust to it and normalize? If so, how long did it take?
7) Did Tykerb help shrink your mets? How long did it take to have an effect and what kind of shrinkage did you see?

Any advice, recommendations and personal experiences are appreciated.

Sincerely,

Dikla
Her2+, ER+, PR+
previous mets to bone
current mets to lung
currently on Herceptin, Faslodex, Zoladex, Zometa
will soon start Tykerb