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Old 06-29-2007, 08:23 AM   #25
suzan w
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Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
This has been a great topic! I just got back from a week vacation and found a "lump" (pimple) right between my mastectomy scars. Because I had been on an airplane from one end of the country to the other and back again I had an " achy node" (stiff neck). Convinced it was the worst...It took a call to my oncologist who told me it was nothing and she will see me in 2 weeks at our regular appointment AND finally a visit to my PCP who told me that it was indeed a pimple, and I had a stiff neck from sitting up all funky on the airplane. Ibuprofin (now, why didn't I think of that??!!) worked on the neck and the pimple was almost gone by the time I got to the doctor's office. That's why I love this topic, because YOU all GET IT!! ( trying the smiley face insert! NOTHING is NORMAL anymore! I worry about everything! I am a very spiritual person, was before my diagnosis-thank goodness!!! Sometimes, however, the creeping worries can overshadow all my good intentions, no matter how hard I try. Yet, here I am, in my "new normal"...trying not to waste a moment! Every time I log onto this site it is such an upper visiting with everyone! Thanks!!!
__________________
Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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