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Old 10-11-2013, 06:36 AM   #8
dearjilly
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Join Date: Feb 2012
Location: Ontario, Canada
Posts: 115
Re: Neuropathy from Avastin - infusion #1

Well Jackie, Jenny, Andi, and KsGal, Thank you thank you thank you!
I have some good news to share.
I had an urgent MRI and guess what!? after only one infusion, the avastin is working.
I couldn't believe how normal my brain looked.
The radiation oncologist looked at me and said, well good news....it looks like it's shrinking, the necrosis, that is.
We were all smiles.
They are holding off for a week, to see if I get any more sensation back in the hands and feet, leg....but the main thing is that it's working and I wanted to share will you. Thank you for prayers, meditation, positivity, getting back to me, helping me, love, healing light, kindness, etc. I appreciate it all.
I'm going back to hug my babies now.
Happy Thanksgiving and I'm thinking off all of you this weekend.
Much love, a BIG HUG from me to you. xoxoxo Jill
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Feb 2013 - NED
Mar 2013 - thought I had progression, watching brain.
April 2013 - GOT MARRIED!!!!
May 2013 - looks like no progression, but necrosis and bigger.
Oct-Dec 2013 - Avastin tx
Nov 2013 - MRI shows necrosis shrinkage!!!!
Jan 2014 - Lepto Mening. disease found
Feb 2014 - WBR
March - BLAHHHH
April 2014 - Liver mets found
April 2014 to present - Chemo again, whooohoo. Fun!
July 2014, scans look good.
Stay on Perjetand hercertin.
Nov. 2014 more lepto-mening disease more WBR.
Feb 2015 more lepto-mening disease in spine and neck. More radiation.
Start on TDM1 no more Perjeta stay on herceptin
March 2015 more radiation in my thoracic area, more lepto-meningial disease
April 2015 trying to walk again.
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