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Old 10-05-2013, 02:29 PM   #1
dearjilly
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Join Date: Feb 2012
Location: Ontario, Canada
Posts: 115
Neuropathy from Avastin - infusion #1

Well, I wasn't expecting to write about this complication from my first Avastin infusion.
I had my first tx on Wed., and by Thursday morning I knew something was different.
Numbness and tingling in my right hand and lip.
Now, after a trip to the emerg to rule out bleeding, which they did..thank goodness, I have full neuropathy on the right side. I'm not sure what all of this means. I'd like to think that the avastin is already working and my brain necrosis is shrinking and some nerves just got in the way. I don't know.
I'm up to 16mg of dex over the weekend to see how it goes, so far it's still the same.
Hard to take care of a 2 and 4 year old, that's a bummer.....big time.
I just hope that some sort of sensation will return.
I thought the loss of right sided vision was enough to deal with, now this. Trying really hard to think that the Avastin is working, and I'm just going to have to deal with all of this in time.
There wasn't any surgery for me, so risky, too deep.
Trying to stay hopefully and optimistic over here.
I wanted this to be so smooth, but it seems that there is always a hurdle in this crappy cancer process.
Soooo....the good news. I'm alive and get to laugh with my kiddies everyday!!!
Thanks for listening, and supporting always my friends.
And of course Denise, thank you for your time and support. I'm thinking of you in Hawaii right now!!! It's going to be an awesome trip!
Jill xo
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Feb 2013 - NED
Mar 2013 - thought I had progression, watching brain.
April 2013 - GOT MARRIED!!!!
May 2013 - looks like no progression, but necrosis and bigger.
Oct-Dec 2013 - Avastin tx
Nov 2013 - MRI shows necrosis shrinkage!!!!
Jan 2014 - Lepto Mening. disease found
Feb 2014 - WBR
March - BLAHHHH
April 2014 - Liver mets found
April 2014 to present - Chemo again, whooohoo. Fun!
July 2014, scans look good.
Stay on Perjetand hercertin.
Nov. 2014 more lepto-mening disease more WBR.
Feb 2015 more lepto-mening disease in spine and neck. More radiation.
Start on TDM1 no more Perjeta stay on herceptin
March 2015 more radiation in my thoracic area, more lepto-meningial disease
April 2015 trying to walk again.
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