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Old 03-20-2018, 09:46 AM   #30
KatherineM
Senior Member
 
Join Date: May 2014
Posts: 94
Re: Cyberknife or Whole Brain?

Thanks, Flori. I am grateful to you, and to everyone who has shared a bit of their journey here. It is a terrible camaraderie to share, but it does help to know that one is not alone. And, yes, stopping the chatter, stepping outside of the fear and the foreboding, being able to just luxuriate in the moment - here, alone in the house, on an unexpectedly sunny day, when the weather predicted rain, eating leftover Korean food, listening to the neighbor building his new house (ha!) - this is crucial and right and good. The disease has taught me to pay attention, to not discount the ordinary because it is not sublime, but to recognize the sublime in the ordinary, and some people are blind to that their whole lives, so I am grateful, though I wish it didn't come at so high a cost. Today I am better with it, though I did not sleep much last night. Thank you for keeping me company in a moment of panic, Flori, I am rooting for you!
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Diagnosed 3/26/14 BC Stage 3a ER neg PR neg HER-2+
5 cm tumor in left breast, needle node biopsy positive
Started TCHP 4/25/14 - 6 rounds
Oncologist can no longer feel tumor, after 4th round
Chemo shrunk tumor to less than a mm
Lumpectomy and axillary node dissection 9/3/14
Radiation for 5 weeks, with boost
Herceptin until 4/3/15
CT Scan on 4/27 shows lung mets (lots of little ones on both sides, largest 1.6 cm) STAGE IV
Lung biopsy shows still HER2+++/ER-/PR-
Taxol with Herceptin and Perjeta May, June, July 2015
Lung mets reduced by 50%
Just H&P through Fall 2015
11/15 Progression
Back on Taxol with H&P January 2016
THP no longer working March 2016
Start Kadcyla 3/16 After first treatment, experienced low platelets, tongue turned black, had to have transfusion. Dry cough and shortness of breath for first week, improves over second and third.
4/16 Platelet transfusion after second treatment, blood blisters in mouth. Allergic reaction to platelets.
6/16 Kadcyla not working. Progression to liver, though lung mets smaller.
7/16 Start Xeloda and Tykerb.
11/16 Port infected. Taken out. Have to go off chemo.
1/17 Back on Xeloda and Tykerb
5/17 Tykerb and Herceptin
11/17 Navelbine and Herceptin
12/17 Progression in lungs, liver reevaluated, no progression
1/18 Haloven and Herceptin
2/18 Sloan Kettering consultation
3/18 Brain mets, 16 lesions, largest 16mm
3/18 Cyberknife to 16mm lesion
3/18 Haloven and Tykerb added
4/18 Scan shows all lesions significantly smaller! Some almost gone. Radiation oncologist says she's never seen anything like it
7/18 Brain scan shows progression, w/ with one new lesion. Don't want to do WBR. Will try for tucatinib.
8.15.18 Start Keytruda
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