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chrisy · 02-23-2012, 09:34 AM

Dear Michka,
I'm with Sheila wishing I could give you a big hug, squeezing all the air out of you so I could remind you to breathe. Heck, I'll remind you anyway. Breathe.

While this is not "good" news and certainly not what you were wanting to hear, it is information you needed to have and I really applaud you for pushing for it. I read a book written by a cancer survivor once and her main point was to not empower the cancer by honoring it with the words she used. A good scan was "FABULOUS, WONDERFUL news". A bad scan was just "information". Easy to say, hard to do I know!

So, you have information that the cancer has not given up. As Sheila said, there are many options which can work, maybe very well or even just to "buy time" until you can access TDM1 and/or Pertuzumab.

I know you feel devastated, take the time you need to cry it out and take care of yourself. Then get mad, stand up and rejoin the battle with the best new weapon you and your oncologist select.

By the way, they say "cm2" to indicate it is, say 1cm x 1cm (2 dimensions).

Hugs and much love,
Chris

02-23-2012, 09:34 AM	#5
chrisy Senior Member Join Date: Sep 2005 Location: Central Coast, CA Posts: 3,207	Re: Bad Pet. I need you. Dear Michka, I'm with Sheila wishing I could give you a big hug, squeezing all the air out of you so I could remind you to breathe. Heck, I'll remind you anyway. Breathe. While this is not "good" news and certainly not what you were wanting to hear, it is information you needed to have and I really applaud you for pushing for it. I read a book written by a cancer survivor once and her main point was to not empower the cancer by honoring it with the words she used. A good scan was "FABULOUS, WONDERFUL news". A bad scan was just "information". Easy to say, hard to do I know! So, you have information that the cancer has not given up. As Sheila said, there are many options which can work, maybe very well or even just to "buy time" until you can access TDM1 and/or Pertuzumab. I know you feel devastated, take the time you need to cry it out and take care of yourself. Then get mad, stand up and rejoin the battle with the best new weapon you and your oncologist select. By the way, they say "cm2" to indicate it is, say 1cm x 1cm (2 dimensions). Hugs and much love, Chris __________________ Chris in Scotts Valley June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?" 9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++ 10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response! 04/05 - 4/07 Herception every 3 wks, Continue NED 04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial 06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin 01/08 Progression in liver 02/08 Begin (TDM1) trial 08/08 NED! It's Working! Continue on TDM1 02/09 Continue NED 02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED 12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver 07/11 - 11/11 Herceptin/Xeloda -not working:( 12/11 Begin MM302 Phase I trial - bust:( 03/12 3rd times the charm? AKT trial 5/12 Scan shows reduction! 7/12 More reduction!!!! 8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!) 9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3 11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc 11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go. 2/13 Gemzar/Carbo/Herceptin - no go. 3/13 TACE procedure