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Re: PET scan results
That is fantastic news Amy! Long may you dance with NED!
A questions for you - I had a PET back in July - which was what showed my secondaries - but since then I have 6 weekly CT as I am on a drug trial. My scans are showing stable in my lungs (The largest they are measuring is 8mm but there are innumerable small mets), partial response in my axilla node (reduced 50%) and my skin met looks like a scar now. I have the option to do a PET (through a friend) as PET scans are not funded for BC patients in Australia. This would show if the cancer is active while the CT cannot show that - it might just be scar that they are looking at. I am a little reluctant as I already get radiation pumped into me every 6 weeks for my CT scans and my treatment wouldn't change anyway - I would stay on the trial. I saw you said that 5mm is the tolerance for the PET - when I spoke to my friend he said the PET will pick up metabolic activity on the end of a pin. Just wondering if you can add anything with your experience of PET. I feel like this treatment is really working and am bamboozled as to why the CT is showing no change in my lungs.
Your news has made my day!
Amanda x
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Amanda xx
40 year old Mum to three gorgeous kids - son 5 and daughters 8 and 11
Wife to my wonderfully supportive husband of 17 years!
22 February 2011 - Diagnosed Early Breast Cancer IDBC Stage2b (ER/PR -ve, Her2+ve +++) - 38 years old
(L) skin sparing mastectomy with tissue expander, axilla clearance (2/14 affected) clear margins.
Fec*3, Taxotere and herceptin*2 - stopped due to secondary diagnosis
June 24 2011 Stage IV - Skin met, axilla node, multiple lung lesions
Bolero3 trial - Navelbine, Hereptin weekly, daily Everolimus/Placebo
February 2012 - July 2012 Tykerb and Xeloda - skin mets resolved, Lungs initially dramatically reduced but growing again
August 2012 (turn 40!) tykerb and herceptin (denied compassionate use of TDM1) while holidaying in Italy!
September 2012 - January 2013 TDM1 as part of the Th3resa trial - lymph nodes resolved, lungs slowly progressing.
January 2013 - herceptin, carboplatin and Perjeta (compassionate access)
April 2013 - Some progression in lungs and lymph nodes - Abraxane, Herceptin and Perjeta
July 2013 - mixed response - dramatic reduction of most lung disease, progression of smaller lung nodules and cervical and hilar nodes - ? Add avastin.
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