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Old 03-06-2011, 06:06 PM   #6
Chelee
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Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
Re: Group Hug Needed!

Ceesun,
Glad you got to move to warmer weather and thaw out. Sounds like you found a wonderful onc that cares about the patients she treats. That must of put a smile on your face.

Like you...at times I can't help but questioned why some members do stay NED while others have a constant battle on their hands? It bothers me because it just tells me how little they really do know. So much more needs to be understood before we can make some real head way it seems? So many of the articles I've read the last 5 yrs sound so promising & positive...yet doesn't seem like we are moving very quickly. When your stage IV it can be a bit over whelming to say the least. Hugs back at you and the her2 gang.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.

Last edited by Chelee; 03-07-2011 at 11:29 PM..
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