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Nancy L · 08-08-2012, 04:17 PM

Thank you for this helpful information. By chance is your SF onc Hope Rugo? She helped me get herceptin because she said to me "you have a lot of disease". Is there anyone on this site who has connections to validate 9/15? I have been working on getting approved for the Th3resa trial and learned from the coordinator that soon they will stop randimizing--everyone approved will get Tdm1. But that is a little different from every onc being able to prescribe for those who have failed other stage iv cocktails. It would make my day if I could get it close to home. I think I read that someone knows the patient advocate at Genentech. Maybe she would confirm. There was so much hype when Perjeta was approved only to be told I couln't get it because I was treated for stage iv with tykerb/herceptin.

08-08-2012, 04:17 PM	#14
Nancy L Senior Member Join Date: Apr 2009 Location: La Quinta, Ca Posts: 253	Re: Denied compassionate use of TDM1 Thank you for this helpful information. By chance is your SF onc Hope Rugo? She helped me get herceptin because she said to me "you have a lot of disease". Is there anyone on this site who has connections to validate 9/15? I have been working on getting approved for the Th3resa trial and learned from the coordinator that soon they will stop randimizing--everyone approved will get Tdm1. But that is a little different from every onc being able to prescribe for those who have failed other stage iv cocktails. It would make my day if I could get it close to home. I think I read that someone knows the patient advocate at Genentech. Maybe she would confirm. There was so much hype when Perjeta was approved only to be told I couln't get it because I was treated for stage iv with tykerb/herceptin.