HER2 Support Group Forums - View Single Post - Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastases)

kaiulanis · 11-13-2013, 01:50 AM

Hi,
I just joined and am fascinated. I have HER2+ leptomeningeal and probably brain mets, just discovered, very early. I've been able to put together Carol's story from Mario and have scattered useful tidbits from Paul but would love a nutshell diagnosis, treatment, result, prognosis timeline history of Nina. And Mario, Evlin, any details you can provide that would help persuade my doctor to try IT Herceptin? I sincerely hope everyone is continuing to enjoy relatively (it's all relative now isn't it?) good health. I don't have any edema and would like to go straight to IT Herc and skip WBRT but maybe you wouldn't agree? It's just that after being the hairless wonder, it came back curly, and I have this fabulous goofy hairdo that I'm loathe to lose. I hope you're still out there listening.

11-13-2013, 01:50 AM	#155
kaiulanis Junior Member Join Date: Nov 2013 Posts: 3	Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase Hi, I just joined and am fascinated. I have HER2+ leptomeningeal and probably brain mets, just discovered, very early. I've been able to put together Carol's story from Mario and have scattered useful tidbits from Paul but would love a nutshell diagnosis, treatment, result, prognosis timeline history of Nina. And Mario, Evlin, any details you can provide that would help persuade my doctor to try IT Herceptin? I sincerely hope everyone is continuing to enjoy relatively (it's all relative now isn't it?) good health. I don't have any edema and would like to go straight to IT Herc and skip WBRT but maybe you wouldn't agree? It's just that after being the hairless wonder, it came back curly, and I have this fabulous goofy hairdo that I'm loathe to lose. I hope you're still out there listening.