[kiwigirl]

Hi Pam mine are in the same location and i have had all your symptoms to. It would seem that this is the area Her2 goes to.

As i have now had 6 treatments i am on the improve my worst was the first four and i was unsteady. I've had my license revoked until doc says i can drive which should be in a few weeks.

I had 10 small tumors in four clusters which they are treating with a lower does WBR and at the same time high dose directly on the Tumors which is called VMAT - 3d radiation that targets the sight and not the rest of the brain. My WBR is to get rid of seeds and it is at 35 fractions and the direct vmat is %100 to destroy the little buggers.

I'm on a reduce dose of decadron and the other ladies have given you good info on that.

I don't do stat's as we are not one but i do believe that your mind does help every time i get zap i imagine they are dead. i have moments when i clean and clear my brian and think i have no disease and will not have any disease.

I don't know if you have tried T-DM1 but i believe that the DM1 crosses the blood brain barrier. At present i am not able to go on this as I only have disease in my brain not any were else. Once you have done your treatment you my be abe to start this.

It has taken me a long time to adjust to and it does require a lot of rest (boring) it is only for a short time.


The other thing is I will have another MRI at the end if my treatment to see how it went not before. The first week of treatment you do get worse before you feel better.

If i think of more i'll let you know. Jac