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Re: when did you 'break up' with your onco?
Valerie;
I went every three months to my oncologist (who I had a wonderful relationship with) for 6 years. In the 7th I went every 6 months. His assistant (also a doctor) come in after the seventh year and told me they felt I was cured and didn't need to see Dr. Young any more. I'm sure Dr. Young wouldn't tell any breast cancer patient they were cured but that it was likely standard treatment after going so long without a recurrence. Dr. Young came in after and we hugged and he told me I could call him any time and would always be part of his family of patients. That was that. When I was diagnosed with ovarian cancer it was tested and I was told it was a totally new cancer and not a recurrence or spread of the breast cancer. Dr. Young has since retired....so sad for me....and I see a different specialist. I had a two year window to enjoy not thinking about cancer and that was nice. But I never felt cured lol.
Cathy
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Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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