Thread: Neuropathy
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Old 01-06-2011, 04:56 AM   #17
michka
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Join Date: Feb 2007
Location: Paris, France
Posts: 858
Re: Neuropathy

Hi Leslie I want to give you hope.
First I am happy the infection cleared up. I lost 8 toenails on Taxol but did not suffer of infections and splits!
I had bad neuropathy in my arm after Mastectomy and bad hand and feet neuropathy induced by Taxol.
I took Gabapentin (neurontin) for more than 2 years. And a little Lyrica. With time, the stabbing and burns in my arm got a little better and when I got off AIs for Faslodex, the neuropathy in my hands in feets improved. I decided to get rid of Neurontin, because it makes you tired, and cut it out over a 4 month period, taking it every other day, then every 3 days..It was very very difficult. I suffered like a drug addict but succeeded. Today I still have the burns in my arm but it is manageable and I only really suffer from my hands and feets when it is cold. So I have heavy gloves and boots. I never take things in the freezer.
I was really happy to have Neurontin in the beginning and with time, was able to get rid of it because things really improved. Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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