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Old 11-27-2012, 10:56 AM   #18
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Re: Scripture Through the Her2 Fight

I don't know if I would claim to be "overseeing" the board, although I do have the POWER to delete spam or any other thread

I agree with Flori re avoiding political discussions - they quickly get hot and divisive and unhelpful. Over the years we've had very few occasions where Joe had to shut down political discussions and that has always been one of the "house rules" of living in Joe and Christine's home.

I think the same could be true of religious "discussions" or controversies, which we have not really encountered very much, in fact I can't really think of any in the 8 years I've been here. I'd hate to see that too.

I think that is very different tho from sharing inspirational messages or quotes, including this thread which is biblical scriptures. I personally find this thread a super helpful gift and really appreciate the work that has gone into sharing these. I also really like that "scripture" is referenced in the thread subject so that those who want/need this can easily find it (vs. searching through a more generic "inspirational quotes" thread) and those who are not interested or do not find it helpful can equally easily avoid or ignore it.

Although I do see your point about where do we draw the line, Flori. To me the difference is a quote from the dalai lama or other religious sources is likely to be helpful to some members; ads for cialis or links to porn are far less likely but maybe that's just me!

I especially love the respect and grace with which we as the her2support family express ourselves and respect each other-Brenda was a champion at this. This is the only online site on which I have EVER posted because I never felt safe on the sites notable for their "flame wars". You know who they are.

I love you all. You know who you are, too.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure

Last edited by chrisy; 11-27-2012 at 11:07 AM..
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