Thread: Poem
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Old 02-18-2008, 12:56 PM   #4
Andrea Barnett Budin
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Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
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Ok Bill, I love your poem(s), the prose of your posts, their humor and imagination!!, not to mention your spiritual core. I love the way you love Nikola. And of course, am saddened by the *wildfire raging in the darkness of your soul*.

I believe in time you will come to focus on the blessing of having Nikki in your life and the awareness that death is not the end of the story. (You will be together again, in time and for eternity.) For now all you can feel is the terrible loss, understandably. It is too soon, I know.

Still a poetry and laughter are aflame within you. Thank goodness for all of us.

It is great that you are using this site to help you vent and heal. I saw Linda Dano (an actress who is quite lovely) in an interview. She is a marvelous, insightful person who is in a lot of pain, having lost her husband/lover/best friend/business partner and her darling mother in a short period of time. She speaks of a group on line --
SupportPartnersProgram.com -- which she has found very healing and therapeutic. I just thought I'd write it down for you, as you came to mind. I feel your pain and we all stand with you as you struggle to regain your footing.

This is one of those moments in Life that chocolate isn't enough...

Sending you a hug,
Andi

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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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