HER2 Support Group Forums - View Single Post - Went for mammo and cancer has returned...

StephN · 09-05-2014, 07:25 PM

Dear Linn -

Hated to hear your news, whatever the stage, that you need to go back on treatment.

I have heard Dr. Kathy Miller speak at the San Antonio Breast Cancer symposium more than once. She has been on panels with top oncologists from around the country/world.

Seems like a good idea to ask her specifically what stage she thinks you are and why. There may be some new thinking or maybe she had to stage you a certain way for insurance to cover your new treatment.

From what I do know of Dr. Miller, I would trust her with my treatment plan.

Just concentrate on your body doing its work to get you back to NED.

09-05-2014, 07:25 PM	#46
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Re: Went for mammo and cancer has returned... Dear Linn - Hated to hear your news, whatever the stage, that you need to go back on treatment. I have heard Dr. Kathy Miller speak at the San Antonio Breast Cancer symposium more than once. She has been on panels with top oncologists from around the country/world. Seems like a good idea to ask her specifically what stage she thinks you are and why. There may be some new thinking or maybe she had to stage you a certain way for insurance to cover your new treatment. From what I do know of Dr. Miller, I would trust her with my treatment plan. Just concentrate on your body doing its work to get you back to NED. __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.