HER2 Support Group Forums - View Single Post - Please post your two cents on Herceptin "side effects" real or perceived!

Andrea Barnett Budin · 07-05-2007, 03:48 PM

EPA & DHA NEED TO BE BALANCED. That's what my onc/supplement expert says. He also pushes Neuromins. + I take E 400 X 3 -- good for skin, heart flashes, ummune sys, inhibits metastases, decreases tumor burden. This amnt of E does not interfere w/my cholesterol #s remaining gd. That's important. So cardiol says fine.

ENDING CHEMO DOESN'T MEAN THE SIDE EFFECTS END! Docs say within 3 mnths tops you should be gd as new. My exper -- yrs later after shocks. May therefore be a bit confusing what's coming from what. But, please keep that in mind. My typing in above post may not have made that clear.

Yes, Vasoline/socks helped heals. Clinique helps hands. Curel body. Then the face, of course, whatever works for you, be it baby oil, or Sheisido or whatever works for you. Day and night.

07-05-2007, 03:48 PM	#209
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	OMEGA 3 EPA 800/DHA400 X twice a day EPA & DHA NEED TO BE BALANCED. That's what my onc/supplement expert says. He also pushes Neuromins. + I take E 400 X 3 -- good for skin, heart flashes, ummune sys, inhibits metastases, decreases tumor burden. This amnt of E does not interfere w/my cholesterol #s remaining gd. That's important. So cardiol says fine. ENDING CHEMO DOESN'T MEAN THE SIDE EFFECTS END! Docs say within 3 mnths tops you should be gd as new. My exper -- yrs later after shocks. May therefore be a bit confusing what's coming from what. But, please keep that in mind. My typing in above post may not have made that clear. Yes, Vasoline/socks helped heals. Clinique helps hands. Curel body. Then the face, of course, whatever works for you, be it baby oil, or Sheisido or whatever works for you. Day and night. __________________ Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...