View Single Post
Old 06-17-2011, 11:54 PM   #77
Jackie07
Senior Member
 
Jackie07's Avatar
 
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
Re: Calling all stage iv sisters

[Introduced this thread to one of our new members. Then I noticed SoCalGal's tally (145 years for all 33 members) Thought I'd double check and add the others following her posting. And I came up with 220 years and three months. I also noticed that many other Stage IV sisters are not on the list - the founder of this support group, Christine (12 years) and AndiBB (13 years), to name a few.

And it suddenly downed on me that I myself have survived my first diagnosis of stage I for 8 years. My recurrence in 2007, a Stage IIb, was caused by a series of failures of the medical staff - the surgeon thought she had had a clean margin, she didn't; the radiologist thought the shadow on the mammograms was 'scar tissue', it wasn't; my family doctor thought I was hypochondriac, he was wrong; and the increasingly 'painful' mammagram I'd been experiencing for four years wasn't because 'some women' have painful mammagrams...

Will I have another recurence and become stage IV one of these days? Nobody knows. But just knowing the fact that so many of our stage IV sisters have beat the odds/on maintenance/receiving active treatment gives me confidence that whatever happens in the future, there is hope.

Thank you, stage iv sisters, for sharing your fighting spirit and triumph with us. 6-15-2011]

(Initial Diagnosis) Stage IV Diagnosis _______Triumph years since Stage IV

Trish – (May 2004) Dec. 2006______________4 yr 6 month and counting
Pam P. – (June 2001) Sept. 2002____________8 yr 9 month and counting
Colleen007 – Oct. 2005 ___________________ 5 yr 8 month and counting
Missyw – (Jan 2001) Aug. 2006 _____________4 yr 10 month and counting
Joan M – (Sept 2003) Jan. 2007 ____________ 4 yr 5 month and counting
Kathy T – [Jan. 2003] _____________________ 8 yr 5 month and counting
Nancy L – Feb. 2009 ______________________ 2 yr 4 month and counting
Chelee – Dec. 2005 _______________________ 5 yr 6 month and counting
Lori R – Oct. 2007 ________________________ 3 yr 6 month and counting
Deena H – Jan. 2011 ______________________ 5 month and counting
Barbara H – May 2004 ____________________ 7 yr 1 month and counting
Chrisy – Sept. 2004 _______________________ 6 yr 9 month and counting
Sheila – Sept. 2003 _______________________ 7 yr 9 month and counting
Nsebesta – May 2004 _____________________ 7 yr 1 month and counting
Mamacze – 2004 _________________________ 7 yr and counting
Ceesun – over 4 years _____________________ 4 yr and counting
Hutchibk – Aug. 2005 _____________________ 5 yr 10 month and counting
Emilieb – Jan. 2010 _______________________ 1 yr 5 month and counting
DEBBIE S – Oct. 2004 ______________________6 yr 8 month and counting
Krisvell – Nov. 2010 _______________________8 month and counting
SuThorn – Sept. 2007 _____________________ 3 yr 9 month and counting
CourtneyL – April 2008 ____________________ 3 yr 2 month and counting
Hema – March 2011 ______________________ 3 month and counting
Schoolteacher – Dec. 2007 _________________3 yr 6 month and counting
SoCalGal – March 2007 ____________________4 yr 3 month and counting
MaryL – July 2004 ________________________ 6 yr 11 month and counting
PatE – Oct. 2007 __________________________3 yr 8 month and counting
KDR – June 2010 __________________________1 yr and counting
Flossie – July 2008 ________________________ 2 yr 11 month and counting
Marilyn – Jan. 2001 _______________________10 yr 5 month and counting
Kim in CA – Sept. 2001 ____________________ 9 yr 9 month and counting
Adriana Mangus – July 2003_________________7 yr 11 month and counting
Kim in DC – Feb. 2008 _____________________ 3 yr 4 month and counting
Fauxgypsy – Feb. 2007 _____________________4 yr 4 month and counting
DianaMK – June 2010 _____________________ 1 yr and counting
Tonya – Aug. 2006_________________________4 yr 10 month and counting
Asahizuru – 2002 _________________________ 9 yr and counting
Vivienne [Mom of] – March 2011____________ 3 month and counting
Radiant – 2010 ___________________________1 yr 6 month and counting
Ahoff – 2010 _____________________________1 yr 6 month and counting
Sherryg683 – Dec. 2005 ____________________5 yr 6 month and counting
Kavy – Nov. 2005 _________________________5 yr 7 month and counting
DQ1 – 2011 ______________________________ and counting
Unregistered – Jan. 2007___________________ 4 yr 5 month and counting
[DMWARN] [wife] – 2000 __________________ 11 yr and counting
Linda b – Jan. 2007 _______________________ 4 yr 5 month and counting
Angela R – (2009) April 2011________________2 month and counting
Hraby73 – April 2011______________________ 2 month and counting
Kmswilson – (Dec 2010) Jan 2011_____________5 month and counting
Mtngrl – (April 2011) May 2011______________1 month and counting
Vicky – March 2011________________________3 month and counting
tammymarie1971 – (Dec 2001) March 2004____7 yr 3 month and counting
StephN – (Sept 2000) Jan. 2002_______________8 yr 5 month and counting

Total: 53 members (who have posted on this thread) and 236 year 10 months as of June 18, 2011
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 06-18-2011 at 01:28 AM..
Jackie07 is offline   Reply With Quote