HER2 Support Group Forums - View Single Post - I Need a Pep Talk...Very Discouraged Today

JillaryJill · 09-21-2011, 07:41 PM

I am a stage IIIc, er-, pr-, her2+++. My onc who is at a major teaching hospital in Chicago, and has been at the forefront of the Herceptin clinical trials since 1999, told me if I handled all of the treatments (which I did) there was less than a 10% chance of recurrance. She sees alot of Her2+++ positive patients because of her reputation treating this breast cancer subtype. I told her to repeat herself, I was so shocked. She said this is a "New Day" and she was seeing stats that favorable. Of course anything can happen in cancerland, but I think the stats you were quoted were quite out of date.

But yes, I sometimes have days where I am scared also. I am told it gets easier as more time passes.

09-21-2011, 07:41 PM	#19
JillaryJill Senior Member Join Date: Aug 2011 Posts: 271	Re: I Need a Pep Talk...Very Discouraged Today I am a stage IIIc, er-, pr-, her2+++. My onc who is at a major teaching hospital in Chicago, and has been at the forefront of the Herceptin clinical trials since 1999, told me if I handled all of the treatments (which I did) there was less than a 10% chance of recurrance. She sees alot of Her2+++ positive patients because of her reputation treating this breast cancer subtype. I told her to repeat herself, I was so shocked. She said this is a "New Day" and she was seeing stats that favorable. Of course anything can happen in cancerland, but I think the stats you were quoted were quite out of date. But yes, I sometimes have days where I am scared also. I am told it gets easier as more time passes. __________________ DX November 2010 Brain MRI, CT of lung, liver, bone, all clear Double Mastectomy w/expanders December 1, 2010 ER- PR- Her2+++, grade 3, 12 positive nodes out of 15 Stage IIIc Started TCH/Chemo December 31, 2010 6 rounds TCH Herceptin every 3 weeks for a year 33 rounds of TomoTube radiation, to chest wall, neck, skin and lymph area September, 2011, MRI to lower spine, hips, DX bulging disk, L4 & L5, pain not from cancer Expanders removed, implants in Dec 1, 2011 Finished Herceptin, December 21, 2011 August 2012, CT of chest and abdomen, all ok Enrolled in MC1136 Phase I Peptide Vaccine Trial at Mayo Clinic, Rochester, Minnesota March 2013, First Vaccine April 2013, 2nd Vaccine May 2013, 3rd Vaccine June 2013, 4th Vaccine July 2013, 5th Vaccine August 2013, 6th Vaccine Done! September 2013, Mayo visit, Echo results 68, vaccine did not effect my heart! Blood work normal. January 31, 2013, Mayo visit, Echo normal February 23, 2014, Numb lips on right side, Brain MRI, normal! June, 2015, Finished the trial at Mayo Clinic. Feels good!