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Andrea Barnett Budin · 12-21-2015, 12:50 PM

They won't give you results until doc has signed off. So hope that is done. Initialed.

My granddaughter's 11 bday is dec. 25. we're jewish. but the date is memorable. seeing star wars. and dinner. chinese, as that's all that's open christmas.

31st is not normal day here. IT'S NEW YEARS EVE!

what time is your appt???

I am only calling Imagine Center to try to get the doc's fax # officially changed
to prevent ongoing MIX UP ev 6 mnths!!!!!!!!!!!!

Imaging Center says they sent it, doc's office says they never received it. AND I, THE PATIENT, AM LEFT HOLDING MY BREATH.

MERRY. HAPPY.

Juls you don't have a signature, explaining your journey. I would love to see that.

It helps.

I know w/trials they will NEVER do changes. However, my experience with friends on trials, if you get a bad CT and they say WAIT and see next CT -- if it were me -- I would insist they change my chemo drug cause it's not working!!!!!!!!!!!

As a patient I would think we have that right, even if it means we're out of the trial...

12-21-2015, 12:50 PM	#36
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	Re: The power of words They won't give you results until doc has signed off. So hope that is done. Initialed. My granddaughter's 11 bday is dec. 25. we're jewish. but the date is memorable. seeing star wars. and dinner. chinese, as that's all that's open christmas. 31st is not normal day here. IT'S NEW YEARS EVE! what time is your appt??? I am only calling Imagine Center to try to get the doc's fax # officially changed to prevent ongoing MIX UP ev 6 mnths!!!!!!!!!!!! Imaging Center says they sent it, doc's office says they never received it. AND I, THE PATIENT, AM LEFT HOLDING MY BREATH. MERRY. HAPPY. Juls you don't have a signature, explaining your journey. I would love to see that. It helps. I know w/trials they will NEVER do changes. However, my experience with friends on trials, if you get a bad CT and they say WAIT and see next CT -- if it were me -- I would insist they change my chemo drug cause it's not working!!!!!!!!!!! As a patient I would think we have that right, even if it means we're out of the trial... __________________ Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...