Thread: Hip/leg pain...
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Old 07-22-2011, 06:49 PM   #20
KristinSchwick
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Join Date: Jun 2011
Location: Iowa
Posts: 231
Re: Hip/leg pain...

Marlene,
I have a few bone mets in my vertebra and pelvis- very near my SI joint. The pain I experienced at first came and went and responded very well to pain meds, it did hurt to push on the area and got significantly worse with exercise. I basically limped around the house and told myself it was from lifting my son wrong. Unfortunately I was wrong, I had first a bone scan, then a PET scan. My oncologist also brushed it off when I first reported the pain.
On a great note- within a few weeks of starting treatment (oral Tykerb and Xeloda) the pain completely disappeared! When you go to your doctor, be very specific about when the pain started- did it come on gradually? Did it get better with exercise, or worse, does it respond to pain meds, does it hurt to the touch, etc. Those questions and answers should help your doc make important imaging decisions.
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[B]Kristin
Aug 2010: diagnosed stage 3b, 4 mo. after birth of son. 29 yrs old and breastfeeding, ER/PR-, Her-2+ started Neoadjuvant therapy: 4x FEC, 10x abraxane & Herceptin
Feb 2011: L mx with recon. Path. showed only DCIS but 4/10+ nodes.
March 2011: 6 wks rads.
Mother passed, lower back pain.
Late May 2011: Bone mets but organs clear; Tykerb, Xeloda, Xgeva. Stopped Herceptin. Implant infected: removed implant.
October 2011: Bone progression; Gemzar and Carboplatin & restarted Herceptin.
Jan 2012: Progression, re-classified as ER+; Tykerb, Herceptin, Zoladex & Femara. Anti-E is working!
May 2012: ovaries out, markers stable but elevated. Cont. Herceptin, Tykerb, Xgeva & Femara.
Dec 2012: aromasin
Jan 2013: faslodex, herceptin, tykerb
Jun: Kadcyla
Aug: Rads to hip, then Perjeta, Herceptin & Taxotere
Nov 2013: Perjeta, Herceptin, Halaven
Early 2014: Affinitor, Aromasin, Perjeta, Herceptin.
June 2014: Estradiol, Perjeta, Herceptin
Aug 14: Tamoxofin, H & P
http://kristin-notdying-blog.blogspot.com/
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