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5 year metaversary!
Today marks 5 years since my Stage IV diagnosis. 2012 was a VERY BAD year, but since then I have been stable on Herceptin and Tamoxifen. I am very grateful to be a member of the 20% club and for the time I have been able to spend reading, travelling, seeing films, volunteering for a breast cancer support organisation, exercising, eating, drinking, and generally making merry.
Less happy about the uncertainty, anxiety, night fears, aches and pains, annoying side effects and the medicalisation of my world.
Best wishes to all.... Pam
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Diagnosed 2004: Lumpectomy - 2 tumours, both grade 1 infiltrating duct carcinoma, about 12mm. ER+,
C-erbB-2 status 3+.
Clear margins, no nodal involvement.
Radiotherapy, i year Tamoxifen, 4 years Arimidex.
Rediagnosed 2012: Multiple bone metastases.
3/12: began on Marianne trial - T-DM1 + Pertuzamab/Placebo.
5/12:Unexpected development of numerous bilateral liver mets. Came off trial.
Started Docetaxol/ Herceptin + Zometa.
8/12:Bones stable +major regression in liver (!)
9/12:Can't take any more Docetaxol! Start on Herceptin and Tamoxifen. Cross fingers!
Changed to Denosumab.
11/12: Scan shows stable - yay!
11/13: Still stable :-) !!!
1/16: All stable, but lowered calcium, so switched to Zometa 3 monthly.
2/19: Happily still stable on Herceptin, Letrozole and 3 monthly Zometa.
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