HER2 Support Group Forums - View Single Post - Working thread - what do you think the HER2+ standard of care should be really?

How about mentioning the option of Foundation One testing to those just diagnosed and letting the patient decide if they want to pay for outside testing to get more info about their cancer?

It is patronizing to not even mention that there is more that could be done or learned about.

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Dx 2/14 3b HER2+/HR- left breast, left axilla, internal mammary node (behind breast bone). Neoadjuvant TCHP 3/14-7/2. PCR 8/14 LX and SND. 10/21-12/9 Proton therapy to chest wall.
Dx 7/20/15 cerebellar met 3.5x5cm HER2+/HR-/GATA3+ 7/23/15 Craniotomy.
7/29/15 bone scan clear. 8/3/15 PET clean scan. LINAC SRS (5 fractions) Sept 2015. 9/17/15 CSF NED, 9/24/15 CSF NED, 11/2/15 CSF NED.
10/27/15 atypical uptake in right cerebellum - inflammation?
12/1/15 Leptomeningeal dx. Starting IT Herceptin.
1/16 - 16 fractions of tomotherapy to cerebellum, break of IT Herceptin during rads, resume at 100 mg weekly
3/2016 - stable scan
5/2016 stable scan
7/2016 pseudoprogression?
9/2016 more LM, start new chemo protocol and IV therapy treatment with HBOT
11/2016 Cyberknife to temporal lobe, HBOT just prior
12/2016 - lesions starting to show shrinkage
8/2017 - Stable since Dec 2016. Temporal lobe lesion gone.
Using TCM, naturopathic oncology, physical therapy, chiro, massage, medical qigong, and energetic healing modalities in tandem. Stops at nothing.
Mother of 2 boys - ages 7 and 10 (8/2017) and a lovely partner with lots to live for.

02-27-2016, 07:39 AM	#25
agness Senior Member Join Date: Aug 2014 Location: Seattle, WA Posts: 285	Re: Working thread - what do you think the HER2+ standard of care should be really? How about mentioning the option of Foundation One testing to those just diagnosed and letting the patient decide if they want to pay for outside testing to get more info about their cancer? It is patronizing to not even mention that there is more that could be done or learned about. __________________ Dx 2/14 3b HER2+/HR- left breast, left axilla, internal mammary node (behind breast bone). Neoadjuvant TCHP 3/14-7/2. PCR 8/14 LX and SND. 10/21-12/9 Proton therapy to chest wall. Dx 7/20/15 cerebellar met 3.5x5cm HER2+/HR-/GATA3+ 7/23/15 Craniotomy. 7/29/15 bone scan clear. 8/3/15 PET clean scan. LINAC SRS (5 fractions) Sept 2015. 9/17/15 CSF NED, 9/24/15 CSF NED, 11/2/15 CSF NED. 10/27/15 atypical uptake in right cerebellum - inflammation? 12/1/15 Leptomeningeal dx. Starting IT Herceptin. 1/16 - 16 fractions of tomotherapy to cerebellum, break of IT Herceptin during rads, resume at 100 mg weekly 3/2016 - stable scan 5/2016 stable scan 7/2016 pseudoprogression? 9/2016 more LM, start new chemo protocol and IV therapy treatment with HBOT 11/2016 Cyberknife to temporal lobe, HBOT just prior 12/2016 - lesions starting to show shrinkage 8/2017 - Stable since Dec 2016. Temporal lobe lesion gone. Using TCM, naturopathic oncology, physical therapy, chiro, massage, medical qigong, and energetic healing modalities in tandem. Stops at nothing. Mother of 2 boys - ages 7 and 10 (8/2017) and a lovely partner with lots to live for. Last edited by agness; 03-29-2016 at 09:24 AM.. Reason: Typo