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11yr5xsr5r · 07-25-2012, 08:10 PM

Don't have my history updated, but took TDM-1 on trial Nov 2010 as nothing was working on a cluster of peritoneal tumors. Was very pleased with not only the response, but how tolerable the drug. My CEA 27-29 was over 526. I'm a gal that had been treated for metastatic disease several time with no marker ever greater than 150. Scary time (aren't they all?) but after 3 treatments significant improvement. Unfortunately, like the other two gals I got booted out of trial as had a lung lesion get bigger. Hated it as it was really working. The rub is that 10 months later, had the lung tumor biopsied and it was negative for cancer. So I am looking forward to the day TDM-1 is available to all, as many women have had great results. That is why there is a big push to "fast-track" its FDA approval. Most of all, I am sorry you and your wife are having to walk this tough path, but praying God will grant her His healing touch through this TDM-1 trial. It's worth the paperwork!!!

07-25-2012, 08:10 PM	#11
11yr5xsr5r Member Join Date: Jul 2009 Location: Longwood, Fl (burb of Orlando) Posts: 9	Re: update and query Don't have my history updated, but took TDM-1 on trial Nov 2010 as nothing was working on a cluster of peritoneal tumors. Was very pleased with not only the response, but how tolerable the drug. My CEA 27-29 was over 526. I'm a gal that had been treated for metastatic disease several time with no marker ever greater than 150. Scary time (aren't they all?) but after 3 treatments significant improvement. Unfortunately, like the other two gals I got booted out of trial as had a lung lesion get bigger. Hated it as it was really working. The rub is that 10 months later, had the lung tumor biopsied and it was negative for cancer. So I am looking forward to the day TDM-1 is available to all, as many women have had great results. That is why there is a big push to "fast-track" its FDA approval. Most of all, I am sorry you and your wife are having to walk this tough path, but praying God will grant her His healing touch through this TDM-1 trial. It's worth the paperwork!!!