HER2 Support Group Forums - View Single Post - almost 14 years NED breast cancer and apparently it's back in my lungs

Cathya · 04-18-2018, 09:49 AM

Carol Ann;

I really appreciate these discussions as they are helping me get back into the swing (OMG) of research again. I originally had a grade 3 tumour which with the her2+, ER+PR+ would have it as a luminal B which has a slightly worse prognosis than luminal A's. I was on arimidex for six years which at that time was pushing it as it was 5 years standard. I had a hard time with herceptin and had to go off of it a few times for the heart impact. I really wanted to be on arimidex immediately after I found out about the ovarian cancer and in my heart of hearts I believe it would have had a positive effect. This is because it's a target and having an aggressive cancer (both the breast cancer and ovarian cancer were grade 3 so both aggressive) I felt I needed to be protective at that point. I guess we have to each individually look at the pathologies and decide which is best. I do have osteopenia in my back but it doesn't bother me. I'll find out what happens going forward on Friday.

Cathy

04-18-2018, 09:49 AM	#43
Cathya Senior Member Join Date: Sep 2005 Location: Ontario, Canada Posts: 752	Re: almost 14 years NED breast cancer and apparently it's back in my lungs Carol Ann; I really appreciate these discussions as they are helping me get back into the swing (OMG) of research again. I originally had a grade 3 tumour which with the her2+, ER+PR+ would have it as a luminal B which has a slightly worse prognosis than luminal A's. I was on arimidex for six years which at that time was pushing it as it was 5 years standard. I had a hard time with herceptin and had to go off of it a few times for the heart impact. I really wanted to be on arimidex immediately after I found out about the ovarian cancer and in my heart of hearts I believe it would have had a positive effect. This is because it's a target and having an aggressive cancer (both the breast cancer and ovarian cancer were grade 3 so both aggressive) I felt I needed to be protective at that point. I guess we have to each individually look at the pathologies and decide which is best. I do have osteopenia in my back but it doesn't bother me. I'll find out what happens going forward on Friday. Cathy __________________ Cathy Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004 Diagnosed Jan. 2005 tumor in supraclavicular node Stage 3c, Grade 3, ER/PR+, Her2++ 4 AC, 4 Taxol, Radiation, Arimidex, Actonel Herceptin for 9 months until Muga dropped and heart enlarged Restarting herceptin weekly after 4 months off Stopped herceptin after four weekly treatments....score dropped to 41 Finished 6 years Arimidex May 2015 diagnosed with ovarian cancer Stage 1C started 6 treatments of carboplatin/taxol Genetic testing show BRCA1 VUS Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady 29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian April 20, 2018 BC mets confirmed, ER/PR+ now Her2- Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these. To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018. Genetic testing of ovarian tumour and this new lung met will take months. To see geneticist to be retested for BRCA this week....still BRCA VUS CA125 has declined from 359 to 12 as of Aug.23/18