HER2 Support Group Forums - View Single Post

Emelie B · 04-23-2012, 05:26 PM

for your lovely thoughts, insights and love. I truly do believe you when you say that you want only the best for me, so I feel at ease trying to share this journey with all of you. You all understand what our day to day lives can be like, so I believe also that you probably understand where my heart is more than my own family.
I just want you to know that this peace that I speak of in my posts exists because I owned up to "my cancer" and said ok, we are in this together.
The peace I feel is when I feel a twinge where the tumors are and KNOW it is my cancer. Not maybe, but know. It is my cancer. It is my body and no one else's and most improtantly, it is my life and I am really letting go and living. No more worry about test, doctors, or pains.
I wish I had known how wonderful palliative care is! These beautiful women who have come into my life make me feel as if I really matter. I did not know that you can get this care while you are in treatment too! I would've called years ago.
The nurse came out to my house to meet me and she had a journal with handwritten notes on my medical history. She asked about my sleep habits, nutrition, exercise, medications, past history and then she asked if I had any questions. She sat with my husband and me and answered questions for 45 minutes. An angel has been sent to us. I can call them any time of the day or night, which is awesome because hubby travels 50% of the time, and someone will answer my questions. They have in-patient nurses at the hospital I go to that are also my advocate and know my medical history.
I can not tell you what a relief it is to have a group of social workers, clergy and physicans working for my comfort. PERIOD. It is all about making me comfortable, and they call once a week to see how I am doing, if I need any different pain meds, and the multiple other questions that arise during the week.
I am getting the best medical care I have ever gotten.
Hands down.
So, please do not worry about me ladies, I really and truly am fine and living my days to best of my ability.
I still hope to hook up with Michka in Paris, so I will be out- of- touch on a much needed family vacation.
Again, to each and every one of you who took the time and the trouble to talk with me, I thank you from the bottom of my heart.
I will check in when we return.
Enjoy Spring all,
Emelie

04-23-2012, 05:26 PM	#1
Emelie B Senior Member Join Date: Jan 2010 Posts: 170	Thank you all for your lovely thoughts, insights and love. I truly do believe you when you say that you want only the best for me, so I feel at ease trying to share this journey with all of you. You all understand what our day to day lives can be like, so I believe also that you probably understand where my heart is more than my own family. I just want you to know that this peace that I speak of in my posts exists because I owned up to "my cancer" and said ok, we are in this together. The peace I feel is when I feel a twinge where the tumors are and KNOW it is my cancer. Not maybe, but know. It is my cancer. It is my body and no one else's and most improtantly, it is my life and I am really letting go and living. No more worry about test, doctors, or pains. I wish I had known how wonderful palliative care is! These beautiful women who have come into my life make me feel as if I really matter. I did not know that you can get this care while you are in treatment too! I would've called years ago. The nurse came out to my house to meet me and she had a journal with handwritten notes on my medical history. She asked about my sleep habits, nutrition, exercise, medications, past history and then she asked if I had any questions. She sat with my husband and me and answered questions for 45 minutes. An angel has been sent to us. I can call them any time of the day or night, which is awesome because hubby travels 50% of the time, and someone will answer my questions. They have in-patient nurses at the hospital I go to that are also my advocate and know my medical history. I can not tell you what a relief it is to have a group of social workers, clergy and physicans working for my comfort. PERIOD. It is all about making me comfortable, and they call once a week to see how I am doing, if I need any different pain meds, and the multiple other questions that arise during the week. I am getting the best medical care I have ever gotten. Hands down. So, please do not worry about me ladies, I really and truly am fine and living my days to best of my ability. I still hope to hook up with Michka in Paris, so I will be out- of- touch on a much needed family vacation. Again, to each and every one of you who took the time and the trouble to talk with me, I thank you from the bottom of my heart. I will check in when we return. Enjoy Spring all, Emelie __________________ Nov. 2006-IDC with Her2 +++ A/C for 3 rounds Dec. 2006- Herceptin and Taxotere March 2007-MRM with 8 of 14 lymph node involvement May 2007-36 Rads Sept. 2007- Stopped Herceptin Jan. 2010- CT scan shows enlarged lymph nodes in sternum and lung involvement Feb. 2010-PET scan shows mets to liver, lung, lymph nodes and bone Feb. 2010- Started Herceptin/Taxol and Zometa April 2010-PET scan clear. Herceptin and Zometa June 2010- Stopped Herceptin continue Zometa and still NED August 2010-Back on Herceptin and Zometa every 3 weeks August 13, 2010- Had another port placed August 24, 2010- PET scan clear. Herceptin and Zometa every three weeks Nov. 2010-PET scan clear Feb. 2011-Brain MRI clear March 2011- PET scan clear May 2011- PET scan clear Sept. 2011- PET, Mammo, Bone Scan all clear- Herceptin only March 2012-Recurrence in lungs and tumor around pota hepatis artery. Added Navelbine to herceptin April 2012- Entered palliative care June 5, 2012-Entered hospice care Planning my memorial