HER2 Support Group Forums - View Single Post

DonnaD · 10-01-2008, 06:55 AM

Dianne,
Welcome to our home. I hope you to will join our family. We are here for you, with knowledge, support and understanding.

Jackie07 and Jean have already given you great info. I am sure more will also respond . I did not use stats in making my decision. I wanted to be as aggressive as possible so I could to beat this disease. Chemo was a scary thought for all of us. But you can get thought it, and we are here to help!

Herceptin is our miracle drug. Many on this site who were not able to get it when they were first diagnosed are convinced they would not have had a reoccurrence if they had Herceptin. I am so thankful it was available to me.

Have you ever thought of getting a second opinion? If you go ahead with treatment you are going to be seeing your onc for 15 months and then years after that. Being up on the latest treatment and trials is very important but..... You need someone you feel comfortable with, who will encourage you, be supportive and answer your questions and phone calls. It is so much easier if it is a good fit.

If you have a chance pull up the post "All those Dancing with NED." NED means no evidence of disease. Their posts should offer you much hope. Be sure and read their signatures, so you can see the treatment they rec'd.

Decisions on treatments are very hard, especially at first when you are new to this disease and learning daily. But there are many around to help. Just ask your sisters.

Keep us informed.
Donna

10-01-2008, 06:55 AM	#5
DonnaD Senior Member Join Date: Sep 2006 Location: Marengo, IL Posts: 518	Dianne, Welcome to our home. I hope you to will join our family. We are here for you, with knowledge, support and understanding. Jackie07 and Jean have already given you great info. I am sure more will also respond . I did not use stats in making my decision. I wanted to be as aggressive as possible so I could to beat this disease. Chemo was a scary thought for all of us. But you can get thought it, and we are here to help! Herceptin is our miracle drug. Many on this site who were not able to get it when they were first diagnosed are convinced they would not have had a reoccurrence if they had Herceptin. I am so thankful it was available to me. Have you ever thought of getting a second opinion? If you go ahead with treatment you are going to be seeing your onc for 15 months and then years after that. Being up on the latest treatment and trials is very important but..... You need someone you feel comfortable with, who will encourage you, be supportive and answer your questions and phone calls. It is so much easier if it is a good fit. If you have a chance pull up the post "All those Dancing with NED." NED means no evidence of disease. Their posts should offer you much hope. Be sure and read their signatures, so you can see the treatment they rec'd. Decisions on treatments are very hard, especially at first when you are new to this disease and learning daily. But there are many around to help. Just ask your sisters. Keep us informed. Donna __________________ Donna Crystal Lake, IL Diagnosed 8/4/06 at age 54 Lumpectomy 8/30/06 Stage llA, grade 3, ER/PR-, Her2++ 1.7 cm tumor, 1+ lymph node out of 9 Completed 4 A/C, & 4 Taxol with Herceptin 36 rads completed 5/16/07 Mammograms, 7/07 clear fractured ribs in radiated area 10/07 Finished Herceptin 12/27/07 Mammogram,CT,tumor markers 1/08 - small lung nodules in radiated area, repeated tests 3/08 stable Mammogram,CT ,tumor markers 6/08 stable NED 2 years!! 3 years !!! 4years!!!! 4 years, 10 months and 8 day NED, calling it 5 years!!! Official 5 years 8/30/2011 8/31/ 2012 - 6 years!!!!!! Last edited by DonnaD; 10-01-2008 at 07:01 AM..