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Old 11-29-2015, 11:57 AM   #14
Joan M
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Re: GOOD MORNING EVERYONE!: oligometastatic breast cancer-- possibility of cure

Amy, I'm not surprised about their response, and it's great to know that you knew better.

I'm sorry for all the delay, Juls. Very frustrating.

Often, oncologists will use local procedures for only palliative reasons, or in other words to stop pain, by irradiating the chest wall or hip for example. But that's not what we're speaking about here. We're speaking about the so-called curative intent. But I never assume that I'm cured. That's a general phrase used when treating cancer with local procedures.

I just wish that oncs would view treatment of survivors with oliogometastatic disease differently than treating those with more widespread mets. We all don't fit into the same mold, and local procedures are clearly an option. But of course, that doesn't mean that they work well all the time.

And I always use a few rules of thumb:
Oncs want to do chemo
Radiation oncologists want to irradiate
And surgeons want to cut

And it's up to us to try to determine the best way for our own situation.

xo
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Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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