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Kmswilson · 06-09-2012, 03:02 PM

Thanks, PatE and everyone! I don't know that I'm a good candidate for cyberknife in my liver. It's about 25% cancer, and unfortunately it's a bunch of different sized tumors and lesions throughout, not just in one location. What a bummer! My doc said his research team found a TDM-1 trial open in Nashville, but it's a 50-50 randomization, and he doesn't want to take the chance of me getting the dealer's choice and not the TDM-1 at this point. If there is one that opens in Louisville, please let me know, that would be fantastic! Though I'll travel wherever I need to in order to stomp this crap!

I did well on taxol and Navelbine both for at least three or four months, and it's great to know that they may work differently with Tykerb. I've been making a list of info to share with him. He's a fantastic oncologist, and he's always open to my bringing him whatever info I've found. I see him on Monday, so I'll talk with him about all of this!

Thanks again for all of the suggestions and support. I love this place! :-) keep kicking this stuff, gals!

06-09-2012, 03:02 PM	#9
Kmswilson Senior Member Join Date: Jan 2011 Posts: 40	Re: Tykerb + different chemo than Xeloda? Thanks, PatE and everyone! I don't know that I'm a good candidate for cyberknife in my liver. It's about 25% cancer, and unfortunately it's a bunch of different sized tumors and lesions throughout, not just in one location. What a bummer! My doc said his research team found a TDM-1 trial open in Nashville, but it's a 50-50 randomization, and he doesn't want to take the chance of me getting the dealer's choice and not the TDM-1 at this point. If there is one that opens in Louisville, please let me know, that would be fantastic! Though I'll travel wherever I need to in order to stomp this crap! I did well on taxol and Navelbine both for at least three or four months, and it's great to know that they may work differently with Tykerb. I've been making a list of info to share with him. He's a fantastic oncologist, and he's always open to my bringing him whatever info I've found. I see him on Monday, so I'll talk with him about all of this! Thanks again for all of the suggestions and support. I love this place! :-) keep kicking this stuff, gals! __________________ Krissi 12/27/10 - IDC, rt breast (approx. 15 cm), lymph nodes, age 36. 1/7/11 - stage 4 IDC, extensive liver mets, Bone mets (spine, sacrum, rib, sternum, upper arm), ER-/PR-, HER2+++; 1/12/11 - port, 1/17/11- startweekly Taxol/Herceptin, monthly Zometa 3/8/11- decrease in all tumors, bones healing. 3/11- 3 wks on/1 off Taxol/Herceptin, +Zometa 6/6/11 - decrease in all tumors, healing bones, 2-4 new liver lesions. 3 wks on/1 wk off Taxol/Carbo/Herceptin, +Zometa 7/29/11 - liver progression, others stable; 8/11-drop taxol/carbo, start Navelbine 12/11 - liver progression; begin AC, drop Herceptin; 1/12 - liver enzymes normal, 2/6 results show regression in liver, stable others, but 9 tiny brain mets (largest 7 mm). Begin 13 WBRs 2/6; 2/29-start Tykerb, 3/7, start Xeloda 5/2012- liver progression and regression, liver biopsy confirms HER2+++. drop Xeloda, start Herceptin, Tykerb, Zometa. 5/2012- brain MRI shows all lesions gone except 1, 2mm shrinking!