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Barbara H. · 08-23-2009, 12:24 PM

Hi Patty,
Thank you for your update. You and Lani and others here are so valuable in providing insight on how to deal with brain mets. I have applauded your decision to travel this road without WBR. This option was also offered to me over 5 years ago and I refused the WBR. So far that decision has worked for me, but I don't know what the future will bring.

My thoughts are with you, and I will continue to hope that a treatment will be developed to help you. Two years ago I started the TDM1 trial, and it has worked for me. Although it is not currently available for patients with brain mets, I hope that it will be approved soon enough for you to try. Researchers are working on new targeted therapies; they need to work on more options for brain issues and offer them in trials.

You are a hero for me, and I always read your posts. Again, thank you for sharing. You are also a great help to many people.

Best regards,
Barbara H.

08-23-2009, 12:24 PM	#10
Barbara H. Senior Member Join Date: Sep 2005 Location: Newton, MA Posts: 951	Re: Update: Spinal Fluid me Hi Patty, Thank you for your update. You and Lani and others here are so valuable in providing insight on how to deal with brain mets. I have applauded your decision to travel this road without WBR. This option was also offered to me over 5 years ago and I refused the WBR. So far that decision has worked for me, but I don't know what the future will bring. My thoughts are with you, and I will continue to hope that a treatment will be developed to help you. Two years ago I started the TDM1 trial, and it has worked for me. Although it is not currently available for patients with brain mets, I hope that it will be approved soon enough for you to try. Researchers are working on new targeted therapies; they need to work on more options for brain issues and offer them in trials. You are a hero for me, and I always read your posts. Again, thank you for sharing. You are also a great help to many people. Best regards, Barbara H.