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Re: Anxiously Waiting
Talked to the Hospital coordinator and the Onco Nurse were still waiting for the final word. Apparently this drug has never been administered here so theres a lot of hoops to jump through. Barbs Onco. was under the impression there was a three week clean out period so she hasnt had anything since the end of June. The three week clean out appears to apply to clinical trials Emelia and Th3resa. Compassionate access doesnt require this. She will start back on the Navelbine and Herceptin till the TDM-1 comes in were told possible another week or two.
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Diag. Aug. 2010
ER- PR- Her-2 +++ Stage IV
Mets to T 6th Vertabrae
Radiation to spine
10/23/10StartNavelbine
11/19/10 Port installed
11/22/10 Started 2nd cycle
1/10/11 Finished 2nd cycle
1/24/11 Herceptin Only
3/7/11 progression, start Taxol/Herceptin
4/18/11 Skin mets appear increase treatments to weekly
rash spreads to right breast
7/5/11 enroll in TDM-1 study
7/29/11 randomly assigned Tykerb drop out of trial and start Tykerb /Herceptin no Xeloda skin mets gone Tykerb working
1/31/12 Skin mets return add Xeloda
5/9/12 Stop Tykerb skin mets back
5/17/12 Return to Navelbine/Herceptin
6/26/12 start process for TDM-1 compassionate access
8/28/12 Start TDM-1
10/9/12 third TDM-1 no response yet
10/23/12 Start Haloven
1/17/12 Start Perjeta/ Herceptin/Taxotere
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