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Old 12-05-2011, 06:30 PM   #5
KristinSchwick
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Join Date: Jun 2011
Location: Iowa
Posts: 231
Re: Lower back pain - when to worry?

Marcia,
I figure I'd better chime in because I did have bone mets in my hip and you should hear both sides of the story. First off- I could NOT jog with the pain in my hip- It drove me to tears to try and jog. Second, I limped everywhere I went. The pain did not come and go- it was constant and got progressively worse over time (in a matter of weeks). Some positions did not cause much pain, but pretty much anytime I was standing or sitting and sometimes even lying down- I felt discomfort. My pain did respond to advil, but it would always come back once the drugs wore off. It was painful to the touch- and the spot never moved. Unlike sore muscles- it did NOT feel good to massage it and heat or ice on the area did NOT provide relief. It was a very sharp and stiff feeling, not achy and no amount of stretching helped either.
Hope that helps- from what you describe- I very much doubt you have bone mets.
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[B]Kristin
Aug 2010: diagnosed stage 3b, 4 mo. after birth of son. 29 yrs old and breastfeeding, ER/PR-, Her-2+ started Neoadjuvant therapy: 4x FEC, 10x abraxane & Herceptin
Feb 2011: L mx with recon. Path. showed only DCIS but 4/10+ nodes.
March 2011: 6 wks rads.
Mother passed, lower back pain.
Late May 2011: Bone mets but organs clear; Tykerb, Xeloda, Xgeva. Stopped Herceptin. Implant infected: removed implant.
October 2011: Bone progression; Gemzar and Carboplatin & restarted Herceptin.
Jan 2012: Progression, re-classified as ER+; Tykerb, Herceptin, Zoladex & Femara. Anti-E is working!
May 2012: ovaries out, markers stable but elevated. Cont. Herceptin, Tykerb, Xgeva & Femara.
Dec 2012: aromasin
Jan 2013: faslodex, herceptin, tykerb
Jun: Kadcyla
Aug: Rads to hip, then Perjeta, Herceptin & Taxotere
Nov 2013: Perjeta, Herceptin, Halaven
Early 2014: Affinitor, Aromasin, Perjeta, Herceptin.
June 2014: Estradiol, Perjeta, Herceptin
Aug 14: Tamoxofin, H & P
http://kristin-notdying-blog.blogspot.com/
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