HER2 Support Group Forums - View Single Post - Please post your two cents on Herceptin "side effects" real or perceived!

Lien · 11-27-2009, 12:47 AM

Thought I'd bump this up.

I didn't get Herceptin. My doc said that he's seeing quite a lot of SE's from it. He said some do better than others, but a few unlucky ones are really sick. He said: "They feel like old women, in stead of the 40-something they are in reality". He told me he'd rather save Herceptin for a recurrence and see how I do without it. So far so good. I'm almost 6 yrs out from diagnosis.

Jacqueline

11-27-2009, 12:47 AM	#463
Lien Senior Member Join Date: May 2006 Location: Haarlem, the Netherlands Posts: 835	Re: Please post your two cents on Herceptin "side effects" real or perceived! Thought I'd bump this up. I didn't get Herceptin. My doc said that he's seeing quite a lot of SE's from it. He said some do better than others, but a few unlucky ones are really sick. He said: "They feel like old women, in stead of the 40-something they are in reality". He told me he'd rather save Herceptin for a recurrence and see how I do without it. So far so good. I'm almost 6 yrs out from diagnosis. Jacqueline __________________ Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.