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Old 04-18-2009, 04:31 PM   #1
Janelle
Senior Member
 
Join Date: Nov 2007
Location: Brentwood, CA
Posts: 76
Exclamation Help for sister with multiple liver mets

Hi Friends,
I have a close friend who is 36 years old and HER2 negative so she doesn't post on this board. She was diagnosed in January of 2007 and found out in February that she has multiple liver mets.

Her bilirubin count is good so far as is her kidney function. The mets are confined to her liver.

She previously was treated with A/C + taxol and avastin when she was diagnosed. She was originally diagnosed at Stage 2 (a). She is not on Carbo and Gezmar and it is not working.

Any advice for possible alternative treatments? Has anyone heard of Laser-induced Interstitial Thermotherapy? Any other ideas?

Has anyone had chemoemobolization to the liver?

I would love your input on who you think are the best medical oncologists in the country or liver specialist for treating a young breast cancer survivor with mets to the liver. Thank you so much!!!!

Please feel free to email me at jpauer@kramerlevin.com or post here.

Janelle
__________________
Janelle
Diagnosed October 2006 at age 37 wtih grade 3 IDC and high grade DCIS
Stage 1c triple positive, no node involvement but
vascular invasion
multifocal disease
Lumpectomy November, 2006
A/C every 3 weeks (started Jan., 2007 and finished March 2007); followed weekly Taxol (finished June 2007) concurrent with Herceptin (finished March 2008);
Bilateral Mast with immediate recon in Sept 2007; finished recon Dec. 2007
Started 5 years of tamoxifen Nov. 2007; started peptide vaccine clinical trial at MD Anderson October 2008 and finished active part of trial in April 2009 (monthly injections of AE37 peptitde (HLA type specific) with GM-CSF or GM-CSF alone depending on if I was in experimental or control group); started Zometa infusions June 25, 2009- 4mg every 6 months for 3 years (taking it "off-label" to try to prevent mets)
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