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Old 04-15-2007, 06:02 PM   #14
Odette
Senior Member
 
Join Date: Apr 2007
Location: Shaker Heights, Ohio
Posts: 86
Red face

Dear Flori,

thank you for the encouraging words!
I do hope that this Tykerb Xeloda combination will work for all of us, but especially will wipe out your mets on the lung and sternum!
I will get that probiotic before I'll start, thank you for the recommendation.
The reason I'm so nervous about this is that my WBC is still low (3.0) from my last chemo and radiation, my oncologist does not seem to be concerned about it. I ended up in the emergency room/hospital twice with neutropenic fever when my counts were very low.

Here is some basic info about the COQ10.
http://www.cancer.gov/cancertopics/p...ymeQ10/Patient
I think some people take it to strengthen their heart while on Herceptin.

So far I've been just working on my diet, but I just arrived to the idea that COQ10 might be helpful to prevent recurrence, but now I'm not sure if it'll be OK with Xeloda (since it is an antioxidant). I'll let you know if I find out good information on this.

I do understand your hesitation about asking for your reports. I always get quite depressed lose a couple of days when I see my scan reports, but it does make me feel more in charge.

If you don't mind me asking: what kind of marker does your doctor use?

Soon you will get your week off of Xeloda. Let us know how you feel then?

Best wishes to you and prayers,

Odette
__________________
May 18, 2006 Age 52,
Diagnosed infiltrating ductal carcinoma
er/pr- HER2 + 3.9 by FISH
June-August 2006 AC chemo
August-October 2006 Taxotere + Herceptin
November 18, 2006 Mastectomy 16 involved lymph nodes
Jan 2, 2007 start radiation
Stage IV, Jan 12, 2007 recurrence in cervical lymph nodes while on Herceptin, stopped Herceptin
Rad oncologist extended the radiation field, good response
Started Tykerb Xeloda on beginning of May 2007
Progression to lungs and conglomerate lymphadenopathy July 2007
Undecided about next treatment

'One does not get to choose one's adventures'

I'm experimenting with my diet, using green tea, flax seed curry and olive oil

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