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Odette · 04-14-2007, 12:03 PM

Dear Esther, Flori and Margo,

We are all in the same boat, the Xeloda Tykerb boat I guess.

I just turned in my paperwork to have it faxed to Tykerb on Friday. I'm quite nervous that my insurance will not pay for it. The social worker already had to fight it out with Anthem that they pay for the Xeloda.

Maybe they'll assist me at least. I'm also nervous about the side effects, this will be my second summer in a row on chemo.

What schedule are you gals on for Xeloda? Two weeks on one week off?
I'm hoping to be on the one on one off schedule, but I'll have to contact my second opinion doc about that at MSKCC.

My other big question is: would COQ10 be safe/ appropriate to take along with the X+T??
If I ask my onc here I know he'll say NOOO.

So happy I met you gals!!

Sorry for my grammar, I did not grow up in an English speaking country.

Best to all, and prayers,

Odette

04-14-2007, 12:03 PM	#12
Odette Senior Member Join Date: Apr 2007 Location: Shaker Heights, Ohio Posts: 86	Xeloda, Tykerb boat Dear Esther, Flori and Margo, We are all in the same boat, the Xeloda Tykerb boat I guess. I just turned in my paperwork to have it faxed to Tykerb on Friday. I'm quite nervous that my insurance will not pay for it. The social worker already had to fight it out with Anthem that they pay for the Xeloda. Maybe they'll assist me at least. I'm also nervous about the side effects, this will be my second summer in a row on chemo. What schedule are you gals on for Xeloda? Two weeks on one week off? I'm hoping to be on the one on one off schedule, but I'll have to contact my second opinion doc about that at MSKCC. My other big question is: would COQ10 be safe/ appropriate to take along with the X+T?? If I ask my onc here I know he'll say NOOO. So happy I met you gals!! Sorry for my grammar, I did not grow up in an English speaking country. Best to all, and prayers, Odette __________________ May 18, 2006 Age 52, Diagnosed infiltrating ductal carcinoma er/pr- HER2 + 3.9 by FISH June-August 2006 AC chemo August-October 2006 Taxotere + Herceptin November 18, 2006 Mastectomy 16 involved lymph nodes Jan 2, 2007 start radiation Stage IV, Jan 12, 2007 recurrence in cervical lymph nodes while on Herceptin, stopped Herceptin Rad oncologist extended the radiation field, good response Started Tykerb Xeloda on beginning of May 2007 Progression to lungs and conglomerate lymphadenopathy July 2007 Undecided about next treatment 'One does not get to choose one's adventures' I'm experimenting with my diet, using green tea, flax seed curry and olive oil