HER2 Support Group Forums - View Single Post - Ovarian cramping. On tamoxifen and Herceptin. Prone to O cysts

europa · 06-01-2016, 06:32 PM

Hi there,

I was on tamoxifen for about 3.5 years. I started having the cramping you are describing during year 1-2. I would get ultrasounds 2-3 times a year because of them and like you the result were pesky cysts. But the last year I was on tamoxifen the cysts stopped and uterine polyps developed which lead to uncontrollable hemorrhaging. I had 4 emergency surgeries in one year to stop the bleeding. The last straw was that i developed a blood clot in my leg which they concluded that it was because of the tamoxifen. So I am no longer on it. From what I was told initially cysts are very common while on tamoxifen and 85% of the time they get reabsorbed naturally. But I wanted to let you know that for me they evolved to a more serious issue. So my advise is to keep an eye out, listen to your body. If you start bleeding and you haven't had a period, get an ultrasound asap and if possible a Sonohysterography (they inject saline into your uterus to get a clearer look).

I used to put warm water bottles on my lower belly and it really helped resolve the cysts a bit quicker.

hope this helps

06-01-2016, 06:32 PM	#3
europa Senior Member Join Date: Jan 2012 Posts: 362	Re: Ovarian cramping. On tamoxifen and Herceptin. Prone to O cysts Hi there, I was on tamoxifen for about 3.5 years. I started having the cramping you are describing during year 1-2. I would get ultrasounds 2-3 times a year because of them and like you the result were pesky cysts. But the last year I was on tamoxifen the cysts stopped and uterine polyps developed which lead to uncontrollable hemorrhaging. I had 4 emergency surgeries in one year to stop the bleeding. The last straw was that i developed a blood clot in my leg which they concluded that it was because of the tamoxifen. So I am no longer on it. From what I was told initially cysts are very common while on tamoxifen and 85% of the time they get reabsorbed naturally. But I wanted to let you know that for me they evolved to a more serious issue. So my advise is to keep an eye out, listen to your body. If you start bleeding and you haven't had a period, get an ultrasound asap and if possible a Sonohysterography (they inject saline into your uterus to get a clearer look). I used to put warm water bottles on my lower belly and it really helped resolve the cysts a bit quicker. hope this helps __________________ DX 10/2011 PET Scan + MRI 10/2011 Lumpectomy 11/11/11 Stage 2B +++ ER+(10%), PR+(5%), HER2+++(1 positive node, 1 micromets to second node) AC started 12/2011 ended 1/2012 Taxol + Herceptin weekly for 12 weeks ended 4/2012 30 zaps of radiation done 6/2012 Tamoxifen 6/2012 every 3 weeks of Herceptin for another year. Metformin Trial 8/12 10/12 MRI- CLEAR 01/13 BRAIN MRI- CLEAR! 01/13 Neck MRI- CLEAR! FINISHED HERCEPTIN 1/9/2013...Woot Woot Starting Walter Reed Vaccine Trial 2/13 CT Scans + ultrasound of abdomen CLEAR-5/13 02/2015 through 11/2015 emergency D&Cs for Tamoxifen induced uterine polyps which caused uncontrollable hemorrhaging 12/2015 blood clot to left leg caused by Tamoxifen. No longer taking it. On Xarelto, a blood thinner 12/2015 Ablation to prevent hemorrhaging from potential issues with Tamoxifen residue in my system 1/2016 continuing journey without hormonal therapy. Reevaluating the option of a hysterectomy and oopherectomy. 4/1/2018 2mm stroke. Yes, stroke! No cause ever found but they believe it was a migraine that went bonkers and created a tiny clot. No deficits. I was back to normal with 24hrs. Now on baby aspirin for life. 7/27/2018 hysterectomy and oopherectomy 01/07/2019 Mastectomy and expanders put in 3/22/2019 Vtach, almost died. Cause unknown. 7/22/2019 New perky boobs put in 7/21/2020 Off of all drugs but a baby aspirin because of the stroke in 2018. www.mychemobag.org www.facebook.com/mychemobag 8 YEARS NED