HER2 Support Group Forums - View Single Post - anyone's allergies improved since getting breast cancer, or worsened since herceptin?

fauxgypsy · 11-11-2007, 08:42 AM

I was tested repeatedly for auto immune disorders several years ago until they finally said I had fibromyalgia, IBC, TMJ, restless leg syndrome and various allergies. Other than a mysterious rash I have had off and on my right hand, everything else seems about the same. The rash on my hand is erupting with more frequency since I started treatment. I am concerned about that because it is on my mastectomy side. I was told once that it was fixed drug reaction to something I was eating but it looks like small patches of shingles and itches badly. I learned years ago not to rub or scratch it because it swells up worse and hurts really bad.
I requested my records last week and the brain MRI I had recently showed deep white matter gliosis in a similar pattern to MS. There was also mention in the records of low gammaglobulin. He had apparently had it checked several times and never mentioned it. It is probably nothing but I really don't like being left in the dark. I probably should have started another thread but I am hoping Lani or R.B. will know something. I am still losing potassium for some reason as well. It is finally within the normal range but I am taking 30ml of potassium elixir per day. They did a 24 hour urine test but I won't see the doctor until the 19th.

Leslie

11-11-2007, 08:42 AM	#14
fauxgypsy Senior Member Join Date: Apr 2007 Location: Mississippi Posts: 600	I was tested repeatedly for auto immune disorders several years ago until they finally said I had fibromyalgia, IBC, TMJ, restless leg syndrome and various allergies. Other than a mysterious rash I have had off and on my right hand, everything else seems about the same. The rash on my hand is erupting with more frequency since I started treatment. I am concerned about that because it is on my mastectomy side. I was told once that it was fixed drug reaction to something I was eating but it looks like small patches of shingles and itches badly. I learned years ago not to rub or scratch it because it swells up worse and hurts really bad. I requested my records last week and the brain MRI I had recently showed deep white matter gliosis in a similar pattern to MS. There was also mention in the records of low gammaglobulin. He had apparently had it checked several times and never mentioned it. It is probably nothing but I really don't like being left in the dark. I probably should have started another thread but I am hoping Lani or R.B. will know something. I am still losing potassium for some reason as well. It is finally within the normal range but I am taking 30ml of potassium elixir per day. They did a 24 hour urine test but I won't see the doctor until the 19th. Leslie __________________ In the world of destiny, there are no statistics. Jan. 26- mammogram and ultrasound- suspicious lump Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes ER+/PR+, her2 +++, nuclear grade 3 of 3 February 20-PET scan showed something on liver. No biopsy. March- Started carboplatin, herceptin, taxol on a four week cycle May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy June 21- new onc, very concerned that there had been no biopsy, June 18th-CAT scan, bone scan-negative August 7th - Brain MRI-negative August 9th- mastectomy, all pathology negative January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07 July 2008-Finished Herceptin!