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Old 07-05-2006, 06:33 PM   #6
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
5 years of what?

Lynn,
I just reread your post (now that I'm off my soapbox about not letting people steal your hope!). I too asked myself "XX years of what?". I assumed that you get chemo and it makes you sick, and then you just get sicker and sicker then you die. I thought "why would anyone even bother"

The treatment is not worse than the disease, and treatment goals for Stage IV include maintaining a reasonable quality of life. You need to keep up your strength to continue the fight. There are very effective chemos which can be tolerated very well. That's not even talking about Herceptin and other "targeted" therapies that hit the cancer cells without killing the good guys. There are side effects, and risks, but manageable.

You can feel good again, and live your life. There will be struggles, but hey, there are always struggles - this will definitely help keep things in perspective!

Chris
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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